to provide support for all families and caregivers while they navigate this terrible journey. Parents and caregivers are forced to leave their jobs and careers in order to care for their sick child at home. This puts an enormous burden on already exhausted resources. We need to help them during this living nightmare - there are NO resources that exist to support parents and caregivers for respite care at home or hospital, meals, grocery shopping, car repair, home repair, mental health support groups and grief and loss for the Angels who lose their fight. This population should be one of the most supported however, it is the least supported and recognized. 


The Emma Noel Foundation’s goal is to provide support to the families and caregivers as well as bring education and awareness to the world about this horrible disease.


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